I had a rather tough visit tonight. First of all, I arrived to discover that they switched Isaac from a conventional ventilator to a high frequency ventilator. Using a high frequency ventilator can be visually intimidating as Isaac's body was vibrating because of it. As I have not read up on and didn't know anything about high frequency ventilators, I was scared during the visit. But I came back to read in my Preemie book that high-frequency ventilators are basically a newer technology and although like anything there could be side effects, it is not necessarily more harmful than a conventional ventilator.
But things actually got worse. I kept asking the nurse whether Isaac was daijoubu (meaning ok in Japanese) and the nurse kept saying that Dr. Ishii will come talk to me. So I knew it wasn't going to be good but I was thinking may be his CLD got worse again. But it turned out to be something worse, something that I thought we have already gotten pass and not have to worry about anymore. When Isaac was born, he had PDA (patent ductus arteriosus - an opening between his heart and his lungs). Micropreemies almost always have PDA after they are born. Isaac was treated by medication and his PDA supposedly closed up. Well, Dr. Ishii told me tonight that Isaac's PDA reopened again. Which may be the reason why he has been having so much lung problems lately. Unfortunately, the medication that was used before is only really effective during the first 2 weeks after birth and beyond that, the risks of the side effects may outweigh the effectiveness/benefits of the medicine. The other options are to monitor and wait and see if his PDA will close back up on its own assuming his condition does not worsen or surgery. Dr. Ishii said that Isaac's PDA can close up on its own but the chances are low. On the other hand, Dr. Ishii also seemed quite concerned about surgery (who wouldn't be for a tiny baby like Isaac). He is going to consult with a pediatric heart surgeon on Monday or Tuesday. So please pray for another miracle for our little Isaac - that his PDA would heal on its own very soon. If they have to perform surgery on him, its not the end of the world. But surgery is surgery, esp. for someone so tiny and fragile, and Isaac would have to go under general anesthesia.
Anyway, I am pretty exhausted from tonight. Please pray for Isaac, for wisdom for his doctors and for vigilance and care from his nurses who need to monitor him a lot closely now to make sure he is getting the correct amount of oxygen. Please also pray for my mom. I didn't tell her tonight because I know she will have trouble sleeping if I did. But I will need to tell her tomorrow morning and she really hasn't been able to deal well with bad news lately because of her high blood pressure. She is leaving Tokyo on Tuesday and I got the hospital to let her see Isaac for 5 - 10 minutes tomorrow. Isaac will not look that great on the high frequency ventilator and I know my mom, it will really scare her and she will really worry regardless of what I tell her. Please pray that she can really trust God and have peace about Isaac.
Thank you in advance for your prayers,
Sonia
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8 comments:
Dear Sonia and Jong,
Just prayed for Isaac and you two.
I prayed for His mercy and miracles.
Love,
Dorothy
I know what a difficult time this can be- you are prayed for- even by people you do not know. Isaac- stay strong!
Praying, praying, praying...and expecting the best outcome possible.
Love in Christ,
Kristina
oh honey, i am so sorry you had such a hard visit. let the tears flow sweetie...those are the hard moments as a mom that you can't tear your heart away from. and you grieve yet another thought and heartache that your mind has to process. i'm sorry that jong is not there to hold you after some unexptected news.
Lord, even this has not come as a surprise to you. Even this was known before Isaac's arrival. And even this you have in the palm of your almighty hand. Father, as Sonia and Jong turn yet another corner in this incredible journey, I pray that your surpassing peace be over the entire situation. That you would cover this miracle little man from head to toe. That you would breathe your very healing breath into his little body that you personally formed. That you would touch with your finger this hole in his heart. It has been acknowledged that YOU are the Great Physician. All knowing, All surpassing, All loving and Omnipotent. In you we live and breathe and have our being. Hold Isaac close as he rests in the hospital away from his beloved mommy and dad. Give him your resting presence. Make him feel secure and loved and covered....and may the voice of his mother and father echo in his ears as he sleeps. Thank you for the living testimony that Sonia and Jong are sharing. May you be glorified in all and through all.
amen
God bless you tonight you three...though you be miles apart.
erin eccles
Sonia,
My thoughts and prayers are with you, Issac and your family. I hope for Isaac to become stronger everyday.
Hugs Allison
Wishing Isaac much health and strength to overcome the PDA. I just wanted to say that I am amazed by the strength that you and Jong show on a daily basis. My babies are currently in NICU in the US and you are an inspiration to preemie parents worldwide.
Praying...
We will continue to pray for your family & we lit a candle in church for Isaac this weekend. parents of 2403 wkr
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