Hi all,
Yesterday was Isaac's 6th week birthday. Jong arrived in Tokyo late afternoon and we were able to get to the hospital in time to see Isaac, albeit a little late. Isaac pretty much slept through the whole visit and Jong was pretty jet lagged too so we didn't have much to report.
We went back this evening and was able to talk to Dr. Ishii. Unfortunately, Isaac's PDA is still there and his surgery is still tentatively set for May 25 although that may change depending on his condition. We must first make sure his infection is completely gone. The good news is his blood test results are showing that his infection is getting better.
We also found out that they weighed Isaac yesterday. He weighed 786 grams. It turns out that his rapid weight gain last week was partly due to some unhealthy water retention. The doctor prescribed diuretics and Isaac pee peed a lot so that's probably why this time his weight didn't go up as much. I have to say we were a bit surprised at how quickly he got so pudgy last week and were a bit concerned. He was face up today and we think his chest is definitely bigger so it seems like he is growing well. Now we just have to make sure his PDA heals so that his CLD can heal as well. I really can't wait for him to get off the ventilator so that we can finally hold him! I just LONG to hold and kiss him so much!!!
It seems like he is reacting well to the high frequency ventilator. His oxygen saturation levels are more stable and he is crashing less. I joked with Jong that Isaac is going to get used to the vibrating feeling and after he goes home, we will need to drive him around all the time to put him to sleep. I guess we will have to get him one of those vibrating chairs. : )
Take care and God bless,
Sonia
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5 comments:
It makes me so sad that you have not been able to hold Isaac still! In the states they don't do things this way. I was holding Ty (kangaroo care) when he was 14 days old. They would have let me sooner but we were waiting on some legal things (adoption related) before they let me hold him. He was still on the vent and he was barely over 2 pounds at that time. Often times he would breathe BETTER when I held him with fewer desats. (Although - the times that he did turn BLACK while I was holding him for them to bag him on my chest gives me nightmares to this day - still though it would have happened whether I was holding him or not!) So anxious for you to get to hold your little guy! When do you get to spend more than an hour a day with him????
Hi Doni,
I know. Its crazy here. We are just really hoping for him to gain more weight and stabilize so that we can try to move him to a different hospital that at least has better visiting hours policy. This hospital will only allow one hour no matter what! A bit ridiculous, right? : )
Sonia
Saying lots of prayers for you! I can't believe they have such a strict policy on visits! Yikes. We could visit Sagan 22 hours per day and at Isaac's age, every minute counts! Remember to gently place your hands on him and speak and sing quietly...he knows you are there and is growing and improving every time you visit!
Hugs,
Susan
Mom to Sagan (former 24 weeker)
By the way, he gets more handsome every day!!!
Hugs,
Susan
Dear Jong and Sonia, I pray for your precious son every day. Isaac looks stronger and more healthy in the pictures! Praise God!
He is such an adorable little boy.
I pray he continues to grow stronger and you will soon be able to hold him.
Praying!!!!!!!!!
Love in Christ,
Kim C.
Hannah's Prayer
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