We hope that you enjoyed a blessed Palm Sunday.
Thanks again for your prayers, kind thoughts and your moving and informative posts.
Friday was a day of poignant reflection on both the miracle and fragility of life for Sonia and me. While we are thinking about a memorial service for Rachel after Sonia is discharged, we had a small ceremony in a tiny quiet room (abou 10x10) for Rachel at the hospital before she was taken to the crematorium. We hadn't seen her since Tuesday and she looked so beautiful, peaceful and delicate. The mortuary prepared a small white casket that we filled with a little teddy bear angel a small cross made of twigs, a little necklace with two hearts and lots of flowers.Pastors Dennis and Takeshi were kind enough to attend to pray for Rachel and to share a short message. In addition to the pastoral staff and immediate family, some of the nurses to took care of Rachel and are taking care of Isaac came down to pay their respects. The nurses and doctors have been exceedingly kind to Sonia and me despite our language barriers and we are so very thankful to Him for that.
I don't think Sonia and I fully appreciated that we wouldn't see
Rachel again until we joined Rachel by God's side until we saw her in her tiny casket. In addition, the service was one of the few times that Sonia and I had had to grieve together thus far. Neither of us were able to fight the feeling that we had failed her somehow and the guilt was a little overwhelming. We had to remind ourselves that God's plan for Rachel and for our family was still beyond our comprehension and that she was truly in a better place. We were grateful that Sonia's parents and my mother were finally able to spend time with her.While we could have stayed in that room with her forever, we had to gather ourselves as our one hour visit with Isaac was scheduled just after Rachel's service.
To go from mourning for Rachel to celebrating Isaac's fighting spirit was a juxtaposition that He couldn't have planned better - for me anyway. While we will always have a place in our heart for Rachel, we were reminded that our grieving could not hamper our being there for Isaac.
He is still pretty active, kicking and swinging his arms. We think he must be dreaming quite a bit as he will suddenly twitch as if we was hiccuping. We hope to post a couple of pictures soon.
Our doctors say that he as stable as can be expected but they remain guarded. In particular, Isaac needs to be able to start taking his mother's milk very soon as he's losing a lot of weight. They've been test feeding at 0.5 ml but apparently Isaac needs to consume 80 - 100 mls a day just to get back to his birth weight. While still active, he does seem weaker and less energetic recently. Looking back at pictures I took of him on his birthday and ones that I just took this weekend, I am astonished at how much thinner he has become. It also hurts so much to watch him knawing at this tiny teething ring that they've given him because he must be so hungry! Fortunately, he still seems to really enjoy his daily foot rubs and the lack of calories seems to be encouraging him to sleep more peacefully.
Thankfully, his temperature is still stable and his skin seems to be thickening which is important to fight infection.
Sonia continues to recover. Her five weeks of bedrest has taken a toll on her leg muscles (which weren't that strong to begin with) so she is having mobility problems and now some pretty significant swelling around her legs, ankles and feet. The hospital is starting to feed her real food which is good thing and she is starting to produce much more breast milk.
Thanks again for visiting with us and for your continued prayers. Limited to one hour visits a day, I don't quite feel like a parent yet but I know Sonia and I are praying as hard as we can for just that responsibility and opportunity when Isaac can come home with us.
God bless,
Jong

7 comments:
Hi Sonia, Jong,
It was good to talk to Sonia on the phone today. Praying for Isaac that he would be free from infection and that he will start taking Sonia's milk. I ordered a couple books for you guys, the one that was recommended in the comments below, and another one. I'll send them on to you once I receive them.
Love,
Cindy
Hi Jong and Sonia and Isaac,
We are lifting the three of you up in prayer tonite. Please know that you aren't alone in this - we have been *precisely* where you guys are. Keep up the writing, it's meaningful to read, and one day you'll want to go back and examine the journey God is leading you on. What you're experiencing will never make complete sense in this earthly lifetime. One day you and I will know why. But not just yet. Some things to keep in mind:
God wants us to be more like Him. Brokenness is one of God's methods to prepare us to be more like Him. Grief is one of God's tools that repairs the brokenness. Fear is one of Satan's tools used to keep away from God's comfort. Anger is what you let it be - it can quicken brokenness, or drive a wedge between you and God. Allow yourself to be angry, but don't use it to shield the grieving process.
Rest in Him...
- Scott and Michele Pickle
Our deepest sympathy goes out to you for Rachael's passing. Throughout your pregnancy, PROM, bedrest, and her birth, you two have shown so much love for little Rachael and Isaac. From reading your postings, I can tell that your every thought, action and decision has been for doing the best and right thing for your babies. You have endured being bed-bound for weeks and weeks, suffered painful IV injections, and most difficult of all, you held on to your babies despite the emotional uncertainty each new day brought. You two have been such loving parents for Rachael and Isaac. As parents, we always wish we could have done more, but I think Rachael and Isaac could not have had a better mommy and daddy than the two of you.
Jin and I will continue to pray that Isaac grows healthy and strong with each passing day. We also hope for Sonia's full recovery soon. Bedrest is so taxing on a person's body. Please take it easy so that you can be strong later for Isaac when he gets out of the hospital.
I know that it must be difficult to try to navigate the medical system here in Japan as you grieve for your daughter and get Isaac the best care possible. This woman had a very premature baby (just over one pound) in Nagoya, and her son is almost two now. She has been through a lot with tests and surgeries and might be able to give you some insight.
http://tamyu.net
Sonia and Jong,
Your story brings back so many, many memories of when my twin sons were born at 23 weeks. Please check out my blog at
http://kimjrnlst.blogspot.com/
for my sons' story.
You will cherish the photos that you have taken of your daughter -- I truly believe that you will someday come to the realization of the power held and lessons taught by your little girl.. the purpose of our exsistence is no only be measured in what we do with the years God has given us but, sometimes, in just the few minutes that God gives us. Your little girl had a big purpose in her short life.
I will try to post a current photo today of my 23-weeker Jason as he is now (5 1/2 years old). Check him out at
http://kimjrnlst.blogspot.com
kim
Dearest Sonia, Jong and Isaac,
Just want to send our love and let you know that we are praying for you all. Thank you for posting the pictures of Rachel's ceremony. It is meaningful for us to share the pain and also the peace from God. JJ and Davis are praying for you daily. I thought you might find it neat that children are praying for another child. This whole experience has strengthened our family's faith.
Sonia, please check out www.medela.com. I think you might be looking for Symphony model.
Love,
Dor, Jon, JJ and Davis.
Dear Sonia, Jong and Issac
I think of you each day,and check your blog each morning.
Sending many prayers your way.
Sonia I hope you are recovering and that we can chat again.
Hugs
Allison
alias: island-chic ivf connections
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