Hi Everyone,
I hope this post finds you well.
Today marked Isaac's third week since his birthday. I can't believe so many days have flown by already. At the same time, I can't believe it has only been three weeks! We're praying for His patience and ability to focus on each day's walk with Him and Isaac.
Isaac's heartbeat and oxygen saturation were more stable today. Our doctor mentioned that he was also stable last night (amen!). They are continuing to give him steriods but they did stop giving him one of two blood pressure medications they had been administering. If he's stable tonight, they will stop the second one as well tomorrow.
We're just hoping that they can stop the steroid injections as it requires them to put two IVs in and the one for the steroids in his arm seems to hurt our poor baby a lot. He seemed to cry and cringe again today everytime we tried to move his arm with the IV.
While we felt both helpless and pained witnessing Isaac's suffering, we were at the same time grateful that Isaac was aware and responsive enough to so clearly communicate his dissatisfaction with his current burdens. Hopefully, his condition will improve quickly enough for them to pull his IVs out in a couple of more days.
We also officially asked whether we could spend a little more time with Isaac during the weekends as we discovered something interesting - if a mother and father come to visit at different time, each parent gets one full hour with their baby! Under the normal rules, you get one hour a day. This makes no sense and the nurse we asked fully agreed and apparently they are discussing this along with changing the visitation rules to permit 24 hour a day visits (like some of the better NICUs here). We were denied of course. We have been preparing to find a new NICU for him so this is just more incentive for us to do so as soon as Isaac becomes stable enough.
Sonia is busy working on our testimonial that we will be giving this weekend. The sermon will be on the second beatitude about mourning and comfort. We were originally thinking of having a larger memorial service for Rachel but somehow it feels more appropriate to remember and honor her this way. While I will be working on it with her, I think it would be best if Rachel's mommy did all of the talking this time (that's probably for the best anyway - I can't seem to stop crying when I talk about Rachel or Isaac).
Good night and God bless,
Jong
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5 comments:
I'm so glad Isaac is staying stable! The blood pressure meds and insulin and everything are something every preemie goes through I think! And the steroids! When Nate came home from the hospital he wa son two medications... a steroid and a medication for his thyroid.. the steroid was for his lungs while he was still on oxygen at home. They thyroid medication we agreed to keep him on until age two ( well almost he came off April1st at 22 months!) because they said they thyroid has a lot to do with pituitary function and brain growth so it was a *just in case* medication. Now he is medication free! I do wish you were allowed to sped as much time with him as you would like too! I know we were with Nathan 6 hours a day or more! But we just sat there he didn't like being touched at all! The nurses said you need to ge thim used to being held.. I said NO i don't... when he comes home I will just sit by his bassinette and look at him like I do here if I have too! LOL
I hope your testimonial goes well for you and will keep you guys in my prayers! You wisper to Isaac he has PREEMIE POWER and keep doing so well!
Sammie
As always, thanks for the updates. Keeping you in my prayers.
Hi guys,
I can't stop looking at his pictures. He's so adorable. And I know it's because he doesn't look like you Jong! :) Good thing Sonia is beautiful -- inside and out.
You guys have held up tremendously and I am proud that you are a part of my family. I am amazed my your faith and courage and Isaac's strength to fight and carry on. God is answering our prayers everyday and I know that Isaac will be well.
I still think of Rachel everyday but I am comforted by the fact that she is at peace and with our Lord. Your grief for her will come in waves and it will never go away but over time it will get easier.
Keeping you in my prayers,
Mary P.
Dear Sonia and Jong,
Thanks so much for the updates, I am sadden that you cannot spend more time with Issac. I continue to send my support and prayers
Hugs Allison
Dear Sonia-san&Jong-san,
It is a great pleasure for me spending time with you last night! and veeery happy to find your golden son, Isaac's face in this blog. As you told me, he is sooo cute! and I feel, now he looks like Jong-san!
I do wish you all goes well.
Hugs,
Yuko
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