Hi Everyone,
On behalf of Sonia, Rachel, Isaac and myself, I would first like to thank everyone for the outpouring of support and prayer. I don't think I can reiterate how much your prayers have kept our spirits and energy up. We'd also like to thank everyone who has posted such encouraging and spiritually uplifting messages on our blog and on Hannah's Prayer. Thanks in particular to those mothers and fathers who have shared their experiences about their own pregnancies, tragedies and miracles. We know that Rachel and Isaac aren't the first premies to be born this early and we aren't the first family to experience this sort of loss and we are humbled and value the fact that we can better appreciate the sense of loss and introspection that all of you must have gone through. Praise the Lord for his mercy and grace and his children for their faith, love and support for each other. It is so clear to us how the Lord works amazing miracles each and every day through this sons and daughters.
Wednesday morning was really difficult. Neither Sonia nor I fully felt the full impact of our loss of Rachel until we woke up that day. It was so difficult to stop the spontaneous outbursts of tears and get out of bed but He certainly hasn't led us this far for us to give up on Isaac and for me to be there for Sonia's recovery. We're also increasingly sensitive to falling victim to self pity which is sinful and a disservice to Him and Rachel's memory.
Isaac seems to be doing his best to take advantage of Rachel's sacrifice and courage. His heartbeat is pretty stable and he seems to be breathing well enough with the help of a ventilator. He has a couple of problems already that Sonia tells me is common for premies such as a hole between the heart and lungs, lower than ideal blood pressure and jaundice. The doctors had us sign a whole bunch of waivers and authorizations to start medicating and infusions to help alleviate some of these problems.
The good news is that he is amazingly active. He kicks and waves his arms around like he's dreaming of a non-stop Jackie Chan movie marathon and seems to be cry a lot even though he can't vocalize his cries because of the ventilator tube. The doctors and nurses say this is a good sign. In fact, Isaac is so active that he's giving himself a bit of a rash (skin on skin friction) which is a bit of a concern because the risk of infection is so high (while the pathologist hasn't come back to us with a definite answer, the twins' placentae and umbilical chords were so brittle that the doctors have little doubt that the infection had started progressing in the babies by the time of delivery).
Our neonatologist tried feeding Isaac a tiny amount of glucose two times today to see if Isaac's digestive system was developed enough to start taking his mother's milk. While he wasn't able to digest all of it, our doctor was encouraged enough to try feeding him about 0.5 ml of Sonia's breast milk late this evening. This was a little sooner than we had anticipated but I assume the faster he can take his mothers milk the better. We are so very grateful that he is in stable enough condition for the doctors to try this. Please pray that the feeding is successful.
Our doctor also scanned Isaac's brain and they didn't see any material bleeding thus far. While we are really really early in the game and this can happen at any time, especially if Isaac contracts an infection, we're grateful for the good news nevertheless and will rely on Him to take care of tomorrow and the day after that.
Isaac also seems to respond to our touch. I've tried to give him little baby foot massages and have tried to play with his hands. They are amazingly articulated and they look so different than they did just two days ago. We'd appreciate any do's and don'ts about managing micropremies that you may have. They don't seem to do some of the things that we have read to be commong in the U.S. (such as keeping things dark or dim to best emulate a womb-like environment, etc...) but I'm not sure whether this makes that big a difference. Isaac seemed to try and open his eyes a bit today which I think is bad since it is too early.
Sonia is recovering slowly but surely. Because of the size and location of the babies, they had to cut a lot more than a normal c-section would require. Between that the the probability that an infection had started because of Rachel's pPROM, Sonia is a little behind in regaining her mobility, continence, etc... and has a bit of a temperature. They are trying to get her started back on a liquid diet.
Tomorrow will be the last time we will have a chance to kiss and caress our darling Rachel before we say good bye for now. We have arranged for a small prayer service tomorrow at the hospital before she takes her trip to the mortuary. We have requested to receive her ashes for us to keep and take back to the U.S. someday. Our pastors Dennis and Takeshi will be with us to give a short prayer. While we will likely always have a place in our heart for our angel, Sonia and I believe that Rachel would want us to take heart and inspiration from her sacrifice and to appreciate and cherish our Isaac and be continuously draw nearer to Him so that she can smile down at us from heaven waiting for the time we will be reunited as a family.
Thank you once again for blessing us so much. We are truly humbled.
We will continue to post updates on Isaac and Sonia. If Isaac continues to make progress, we'll also try and post a couple of pictures as well.
God bless,
Jong
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18 comments:
I am deeply sorry for your loss. Although I could never begin to relate to the loss of a child, I can definitely relate to have a child in the NNICU. Our boy/girl twins were born at 28 weeks gestation. I can tell you that there IS a light at the end of that long, dark tunnel. It just may take a while to get there. I wouldn't wish the unpredictable days of life with a baby in the NNICU on anyone, but you will see that it will draw you and your wife closer to one another and closer to your faith!
Please visit the website of our twins. They are now two. If you click on the links button, you can go to the photo gallery that shows pictures of them from birth to now.
I am praying that it gives you hope during these difficult days! Please email me anytime, or have your wife email me. I know the exact feelings that you all are having and all of your feelings are OK! They are normal. Well, as normal as they can be!
I will continue to watch Isaac's progress and keep your family in our prayers!
I had twins at 24 weeks... we lost one... this book helped me understand everything... I call it my Preemie Bible... anytime the doctors came to us with something new I would look it up to understand it better.....
Preemies : The Essential Guide for Parents of Premature Babies
by Dana Wechsler Linden, Emma Trenti Paroli, Mia Wechsler Doron M.D.
I will continue to pray for your Isaac and for you and your wife as well!
I've never lost a child, but am praying for you during this time. Thank you for sharing your story with us, your faith, and allowing us to feel part of your life. Rachel was an inspiration to all of us, and I now pray that Isaac will remain healthy and improve.
Jong and Sonia: your faith is an inspiration to us. You have handled this challenge with such dignity and you inspire me to face my challenges with the same wisdom and trust that you have faced yours.
We are so sorry for your loss of your angel Rachel. And will pray for Isaac. Our son was born at 24.3 weeks and is now 2 yrs old. He's a little behind developmentaly. Have faith and hang in there. hil & dan
Sonia and Jong, we are so sorry for the loss of Rachel Grace and excited that Issac Samuel is here.
Please know that your family is in our thoughts and hopes.
Jen and Dan ("adelaidesmom" from WebMD)
The book mentioned above helped me too. I was studying so much, Ty's neonatologist asked me if I was a Dr. (LOL). I was journaling every day during Ty's NICU experience so if you have any down time and want to skim over the life of a NICU baby you can visit our website (www.jimanddoni.com). Ty was transported to a level 3 NICU in Mesa, AZ and they did a wonderful job. Ty's NICU journals can be found at: http://www.jimanddoni.com/OurFamily/OurKids/TyJB/TyJB.asp. Ty had a PDA like Isaac that closed with Indocin, pulmarry hemorrage, was on oxygen until 10 months, Bilateral brain bleed (Grade 2/4!), BPD, ROP, PVL,...you name it. He is now an active 2 year old and if you saw him you would never know he was 106 days premature (25 w 2 d). Lifting your family up in prayer all through the day.
Sonia and Jong, we are so sorry for your loss of angel Rachel, and Issac is in our everyday prayers.
Our son, August , was born at 26 weeks gestation, weighing 670 grams(1 lbs and 8 ounce). Now he will be 5 next month.
We know exactly the feeling that you all have, and keep praying for Issac as we did for August.
No bleeding in brain is the biggest good news since it's the biggest problem for such early born child. Infection is almost inevitable. August had twice infection in NICU. Most important thing is that Doctor can find the exact bacteria and use the correct Antibiotics.
Keep your faith and Him will lead you through this.
Laker&Aining
Hello,
I was so delighted this morning to see your post and to learn that Isaac is still fighting to survive.
As I mentioned in a previous post, I too had twins at 23 weeks gestation. Our son, Alex, died after about 20 minutes. Our son, Jason, is now 5 1/2 years old and doing wonderful.
I do not know if you plan to send out birth announcements in the future but if you do, I would like to share the words that we used on our announcements:
"IN THE BEGINNING GOD CREATED
HEAVEN AND EARTH
GOD BLESSED US WITH TWINS
ONE IN HEAVEN AND ONE ON EARTH"
On the bottom of the card it read:
In loving memory of
Alexander Richard
Born July 10, 2000 at 5:18 a.m.
Returned to heaven at 5:40 a.m.
and
Celebrating
Jason Fredrick
Born on July 10, 2000 at 5:31 a.m.
Weight 1 pound, Length: 12 inches
Anyways, I just wanted to share this with you. I know Isaac will be okay. he's a fighter...
Kim
The Preemie book mentined is great! I had twins at 24 weeks. Nathan weighed 1 pound 5 ounces, and Noah weighed 1 pound 1 ounce. We lost Noah due to complications after 12 days. It was the worst thing I have ever experienced and there are still days I look at Nate and cry because I know there should be two... We were 2 hours away from home because they had flown me to a hospital with a level 3 NICU. We had Noah cremated and his ashes are in a sterling silver Noah's Ark, the inscription reads "They Came Two By Two"..
Nathan did incredibly well in the NICU... he only spent a total of 77 days.... which is amazingly short for a preemie! Preemies are very resilient, and all very different. Noah liked the light and being touched, Nathan like the dark and the nurses called him The Grouch because he would de-sat if you just looked at him!
You and your family will be in my prayers and thoughts... and a candle is lit for Isaac!!
Sammie
I will third on the Preemie book. It has a lot of info that will help you in your journey through the NICU. I had twins at 31 weeks and also found the book Parenting Your Premature Baby and Child The Emotional Journey very comforting. Please know that the rollercoaster of emotions when you have a child in the NICU is normal. I had many "bad" days but the most important thing is to be there for your child and each other.
I am also a member of a preemie forum. The members are very helpful. If you are interested here is the link http://preemiegroup.1.forumer.com/index.php?act=idx
As always praying for your family.
reno81 from Hannahs Prayer
Hello Jong and Sonia,
I will not be with you today and I can think of no adequate words to share with you. So I will share words that touched me from Mayor Mike Bloomberg at the September 11, 2004 Memorial:
“It has been said that a child who loses a parent is an orphan. A man who loses his wife is a widower. A woman who loses her husband is a widow. There is no name for a parent who loses a child, for there are no words to describe this pain.”
You remain in my prayers, especially at 1 pm today,
Sabrina
Jong, Sonia & Issac ..I'm so happy to hear Isaac is fighting. Sonia, I also had the more complicated c-sect & Prom and recovered quickly , there is hope :) The loss of Rachel will be heavy at times, but faith guides us through it, knowing we will be with our angels again someday...plz email me if you ever feel up to it , I'd be more than happy to chat with you about prom , losing an infant, ANYTHING ....I have a great collection of inspiring poetry you might enjoy....
Take Care ...
Lori (redgirl22@msn.com)
You ALL remain in my prayers
Sonia, Jong, and Family,
I am still praying for the continuous improvement of little Isaac. May he stay strong and not suffer any serious complications. Sonia, I pray for your healing. I hope that you will be feeling better soon. Jong, I lift you up to the Lord for peace and rest. You are all in my prayers.
Kristina Whitley
Woodstock, GA, USA
kpwhitley@hotmail.com
Jong, Sonia, & Issac,
All of you are in my thoughts and prayers. I heard about you through Doni Brinkman. I can not imagine anyone who would know more about micropreemies than she does. I say this very lovingly, but she was OBSESSED w/ learning everything she could to make sure that Ty was given every opportunity to be a healthy, happy, little boy and he is surely that. Prayers are being said on your behalf in Mississippi. Hang in there and God Bless you and your family.
Jennifer Cowart
Smithdale, MS
I am 30 weeks pregnant with my first child right now, and am mourning with you at the loss of your dear and brave Rachel, and rejoicing with you and the blessing that Isaac is. I will be praying for Isaac to grow in strength and for your family to feel comfort and love from above.
Jong & Sonia,
Tomoko and I are so sorry regarding your loss of Rachel but we rejoice that Isaac is surviving and we pray for him daily. We are also praying for the both of you. Immediately after the delivery, we forwarded your message to more than 30 Christian friends and family members around the globe to solicit their prayers and we have already received many responses, which were all heartfelt and positive. I think you have also heard from some of them directly. So rest in the fact that many prayer warriors are fighting on behalf of Isaac and your family, claiming a victory in this battle. If there is anything we can do for you locally, please let us know. We look forward to Lalah playing with Isaac one day. May God richly bless the three of you.
In Him,
Dan, Tomoko and Lalah
Jong and Sonia, I cannot imagine the pain you are experiencing right now. Your little angel Rachel will always watch over her brother Isaac. It is a good sign that Isaac appears so healthy with no brain bleeds. Micropreemies tend to have a bit of developmental delay but I have no doubt that Isaac will persevere. Your family is in my thoughts at prayers.
Please check out the stories and support on http://www.shareyourstory.org. As a mother of a preemie, I've found the information and support invaluable. The site is run by the March of Dimes.
Sincerely,
Clarissa
my heart is breaking with you over the loss of your darling girl. i pray you will be able to grieve with the Lord's tender arms around you.. and yet find the moments of joy you so need with your son. the balance of the two must be incredibly difficult and i pray the Lord's mercy upon you through it all. i am grateful the Lord promised that though we mourn, when we know Him our mourning is not without hope... may you find all the hope and joy and peace you can handle in the days to come.
i'm just so sorry for your loss at the same time and will continue to pray for precious isaac to be touched by the mercy of the Lord too.
lovingly,
a sister in the states
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