Hi all,
Jong and I went out to dinner just the two of us for the first time since I was admitted to the hospital tonight and we had a very nice long talk about all that happened. Anyway, after dinner and pumping, I konked out and just woke up and finished my late pumping session so I thought I'd do a quick post about Isaac's condition today.
The doctor actually wrote down a few things in English so we could understand him a little better today. Apparently, Isaac's problems/instability the last couple of days was due to blood circulation problems - which caused low blood pressure, which also affected his breathing and his kidney functions. After we left yesterday, his condition worsened again so the doctor decided to treat him with a low dosage of steroids as well as glucose and insulin. After putting Isaac back on IVs with the above, he stabilized again. When we saw him today, his numbers stayed solid and stable the entire hour we were there.
The only thing was our poor boy had 2 IVs in him - one on his right arm, one on his right leg and his other left foot had a monitoring sensor on. Since he likes moving a lot, this was really difficult for him. We could see he really wanted to move his right arm but every time he moved it, it must have hurt because he would really frown or he looked like he was ready to cry. Boy did it break my heart. But we are very glad that he stabilized since if his poor blood circulation is not treated, the risks of PVL and Cerebral Palsy would increase.
Because of his problems, they also decreased his feedings back to 8ml per feeding. But he seemed so hungry! They gave him a pacifier and he was really chomping away at it! Hopefully, Isaac stayed stable after we left and they should go back up to 9 ml tomorrow!
Isaac is so brave - we are humbled by how hard he is struggling to stay alive and healthy. Compared to him I feel like such a wimp - the last week of my pregnancy, I was on increasing dosages of drugs to help stop my contractions, which also caused me to feel sick, and I also couldn't move from lying flat on my back (if you have been pregnant, you will understand how hard it is to lie flat on your back without moving with a big pregnant belly) as moving caused more contractions. I was so uncomfortable - at times I didn't think I was going to make it. But that was only for a little while. I just pray that Isaac got a much stronger spirit from our Lord than me as he has such a long way to go.
He is also so cute. Its funny because when I touch him, he would stay asleep but when Jong starts touching him, he would usually wake up. Even though Isaac is really tired, he would open his eyes a little bit as if he was trying to see what is going on, close his eyes again to rest, and then open his eyes a little bit (imagine when you try to peep open your eyes when you are really tired) and so on. It is just soooo cute! Jong gets so excited every time Isaac opens his eyes and peeps at him (even though the doctor said Isaac can't see it, its hard to not think so with his eye movements!)
In any case, I better go back to bed now. Take care and God bless,
Sonia
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3 comments:
Sonia, Jong, and Isaac, I continue to check back here every day and always hope and pray for the news to remain good.
One thing you mentioned about Isaac looking at you caused me to remember something from James' NICU days--when James was born he had an e-coli infection that had gotten into his eye, and for the first few days they did not know what bacteria was causing the infection so did not treat it with the appropriate antibiotics. James' eye was very watery and swollen and looked horrible, and his other eye barely open. But he kept looking at us and I swear he could see everything.
James is 4 now, and we have never discussed with him any specifics of his medical challenges in the NICU--he has seen some pictures but none from his very earliest days. The other day we were talking about when he was born, and he told me that his eye was "very itchy", and "very wet" when he was born. He even identified his right eye, the one with the infection. He says he remembers that mommy and daddy came to see him every day, and tells me that he would lie still in his little box with two doors and wait for the doctors to put their hands in to "give him a check" then wake up when they were gone.
He talks about it so matter-of-factly. There's no way to know whether he's actually remembering or creating a story from bits and pieces of what he's seen and heard over the years, but either way it is very accurate and quite amazing.
Just thought I'd share, because I'll bet Isaac is seeing you and understanding that you are his mommy and daddy.
I will sign up for an account one of these times, I keep forgetting.
Heather Mansfield
Sonia,
I will continue to pray for Issac's strength. Sounds like he is doing some really cute things, that is positive, he knows you and Jong. Issac is a brave soul but so are you, remember that.
Hugs Allison
Isaac is a beautiful little guy. I am keeping him in my prayers.
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