Dear all,
I know some of you may be looking for news to see if I was able to kangaroo Isaac today. Unfortunately, the answer is no. In fact, it now looks like they might not let me do it for quite a while, although after seeing how upset I got after learning the news, they said they may let me hold Isaac for a very short time sooner. I cried for a whole hour in NICU today. I just felt so sad that our precious little boy has been struggling so hard by himself inside this box for almost 4 months now and has never had a cuddle in his life yet. : (
I ended up getting a pretty bad migraine tonight and I may be on the verge of getting sick. I just woke up to pump but will be going back to bed soon. Please pray for me not to get sick because if I do, it would be the 3rd time in less than 4 months (since my babies were born).
I did get to see them feeding Isaac 5 ml of milk from the mouth today. They have been doing it this week but only during the day so I only got to see it for the first time today. They also didn't kick me out today so I ended up staying for around 1 hour 45 minutes today. I will hopefully be able to load some video of him feeding from his mouth tomorrow. Also, I found our little boy sleeping cross-wise in the incubator again after coming back from pumping in another room (before I left to pump, he was sleeping length-wise as he should have been). It is now confirmed that we definitely cannot leave him hungry because I witnessed another feisty tantrum he threw when he got hungry and saw how he calmed down immediately after getting fed. He is just so cute.
Thanks for your prayers. I guess I need to be patient for even longer...
Sonia
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5 comments:
Dear Sonia,
I am so sorry that you could not hold Isaac today. God must have some great plan for you. I will pray that you would not get sick and be strong for Isaac.
Ai
I am also sorry to hear that you couldn't do the kangaroo care today. I am so sorry you were crying so much as well. But I am sure that you are also thinking that God's doing His wonderful work in His own time. May God's Spirit comfort you tonight, and also keep you from getting sick!
SL
Hi,
I have been reading about your babies for some time now and I have been praying for little Issac to be strong and to contiune to be restored to full health.
I too am the mother of identical twin boys who resided in Heaven with Jesus and they also were born at 23 weeks gestation. They tied a knot in their umbilical cord and went to be with Jesus in eternal joy before they came into the world.
I fully believe that you have to be a strong advocate for your little son. The doctors and nurses are not going to be their forever although it seems like it right now. You and Jong have to raise him and sometimes that means having to be strong and courageous in standing up for what you and your husband think is in the best interest of Issac. Kangaroo care has been proven to be very effective in helping babies of any size and age to grow and to breathe easier. Touching your baby and holding him to your chest can improve his breathing due to the fact that he can feel you breathing and babies will try to follow what you are doing. It will also help to calm him down quicker and he will more than likely eat better and maybe even a little bit more. Issac is blessed to have such wonderful and godly parents. Also by beginning kangaroo care sooner, Issac will more than likely gain weight faster, breathe easier, calm down sooner, sleep better, be better behaved and the end result will be that he will be able to go home sooner.
Sending hugs your way Sonia! I am not sure what the thinking of the hospital is on not letting you hold Isaac. He has a cannula, they can do blow-by...why not let you try! This is so frustrating I know. Hang in there, we are all praying for you every day.
Susan
I would be crying my eyes out over that too Sonia! It doesn't make any sense to me. I was holding Ty Kangaroo Care when he when he was 2 weeks old (at 27 weeks). He was struggling with CLD too and was still on the vent. For the most part he did better while I was holding him. There were days that he had MAJOR crashes - nearly flatlining crashes while I was holding him but that happened when I wasn't holding him too so no one ever assumed it was Kangaroo care. I don't get what their hang up is with this. He needs his mamma!!!!!! Sorry I am not making this any better but I am so frustrated for you! Ty was able to leave the hospital after 83 days as well. He was not breathing on his own, he was still having trouble eating, and he still was having apnea. SO....they trained me in home care and we went home with oxygen, a feeding pump and NG tube, several meds, a heart monitor and sat monitor. Are they waiting until Isaac has no need for any of the above before they send him home? Are they discussing dates with you at all yet? Waiting and praying with you (but obviously not very patiently:).
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