I arrived to a very busy NICU today. It seems like there were at least one or two new admittances and all the NICU beds were filled. The last 2 patients they have put next to Isaac have all been 30 weekers and they all looks so massive compared to Isaac. Its hard to imagine that Isaac will become that big some day!
Isaac was sleeping sweetly when I first arrived but then the nurse had to switch him to the other side and he woke up. And boy was he a handful when he was awake! He is starting to really not like all the tape and tubes on his face and he keeps trying to use his fingers to take off the tapes. Then he somehow was able to catch on to the feeding tube going down his nose with his hand and he grabbed it and started yanking it out! He got a few cms out before I was able to stop him!! All the NICU nurses were busy running around taking care of other babies and I started squealing "No, No, No" to Isaac. I think I surprised the nurses. He is also very unhappy about the ventilation tube and he kept moving his head seemingly hoping that he could get that out too. So would you all pray that his lungs and his CLD will miraculously heal very soon? He is getting to the gestational age that he wants to be a lot more active and he just doesn't seem to want to be held back with all these tubes and things.
Unfortunately, the nurse told me that the chest x-ray they took yesterday showed that his lungs looked the same - with no improvement. The good news is his heart has gotten smaller. This is just from the nurse and not the doctor so I will have to wait to talk to the doctor and find out more details. However, I can see that his breathing has not really improved the past few days. His SpO2 levels (oxygen saturation levels) actually seemed more unstable today than yesterday. I guess his lungs have been more wet lately and the nurse showed me the yellow phlem that is coming out of it. This is causing him to have more difficulty breathing well. Its such a catch-22, the ventilator is making it hard for his lungs to heal because of the pressure it puts on his lungs but he can't breathe without the ventilator.
One piece of good news is that his CRP score went down a little today - to 0.9. Hopefully, the anti-biotics will really kill of this new bug. We don't know if his phlem is caused by the infection or just from allergies or irritation. I hope its because of the infection and that he will get better soon. I have seen him sneeze a few times the last few days including today. May be he has a cold? He is soooo cute when he sneeze though.
In any case, because he was such a trouble maker when he was awake, I was too busy trying to make sure he wasn't trying to pull his ventilation or feeding tube out when he was awake. I therefore only took pictures of him looking like a sweet angel when he was sleeping in the beginning and the end of my visit. The nurse said that he is usually even more of a trouble maker at night!
I am kind of bummed its Sunday night already. I really am not ready for Monday! I didn't do much this weekend but still feel like I haven't rested enough. Weekends just go by too quick! I only get Japanese holidays off but I so wish I could have July 4th off! ^_^
God bless,Sonia
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2 comments:
Sonia and Jong,
Prayign specifically for CLD and the Lord and His Spirit will fight against the bacterial infection and that he will heal the alveoli, bronchioles and bronchi of his lungs and have a miraculous healing so that His name will be glorified. We proclaim the Lord's love over Isaac.
Hi Sonia
Good to hear about the more recent developments -- will continue to pray for his lungs, eyes, heart -- and just easier breathing for the little tyke. Even with all the wonderful news regarding Isaac's progress, I am reminded how I/we are to pray without ceasing. And that he is truly in His hands and watched care. I am thinking of you and praying that you continue to be courageous and full of hope, faith, and joy inspite of what you may see with your eyes and feel with your heart. Lift all those thoughts up to the Lord, especially the tired and sad ones as they emerge. Don't hang on to them. Just pray them out to Him and be done with it (until it should raise itself again -- and then give it right back to Him). Easier said than done, but you are doing it. You only need strength for each new (one) day. Don't think too much beyond that...He is with you, Jong and Isaac and carrying you three all the way/all the time, especially cutie pie Isaac :) Gotta smile, gotta praise, gotta be filled with His joy. Lots of hugs,
OXAndrea
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