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Thursday, February 05, 2009

MUNCHAUSEN BY INTERNET: FAKING ILLNESS ONLINE by Marc D. Feldman

I just wanted to share some information with you all to protect yourselves.

The following article is from this link - http://www.selfhelpmagazine.com/articles/chronic/faking.html

NY Times also has an article on this - http://query.nytimes.com/gst/fullpage.html?res=9F0DE3D7163FF930A15757C0A96E958260&sec=&spon=&pagewanted=print

MUNCHAUSEN BY INTERNET: FAKING ILLNESS ONLINE by Marc D. Feldman

Online Support for People with Illness

The Internet is a medium of choice for millions of people who need health-related information. Medical websites have multiplied exponentially over the past several years. Thousands of virtual support groups have sprung up for those suffering from particular illnesses. Whether formatted as chat rooms, as newsgroups, or in other ways, they offer patients and families the chance to share their hopes, fears, and knowledge with others experiencing life as they are. These online groups can counter isolation and serve as bastions of understanding, deep concern, and even affection.

Unfortunately, cyberspace resources are sometimes deliberately misused by people intent on deceiving others. False product claims in spam are perhaps the best-known example. But even in the relative intimacy of health support groups, individuals may choose to mislead others by pretending to have illnesses they do not. They divert the attention of the group toward their feigned battles with cancer, multiple sclerosis, anorexia nervosa, or other ailments. The eventual discovery of the deceptions can be devastating. One group member called it "emotional rape" to have cared so deeply about a person who lied to her and others from his first post on.

Munchausen by Internet

For decades, physicians have known about so-called factitious disorder, better known in its severe form as Munchausen syndrome (Feldman & Ford, 1995). Here, people willfully fake or produce illness to command attention, obtain lenience, act out anger, or control others. Though feeling well, they may bound into hospitals, crying out or clutching their chests with dramatic flair. Once admitted, they send the staff on one medical goose chase after another. If suspicions are raised or the ruse is uncovered, they quickly move on to a new hospital, town, state, or in the worst cases — country. Like traveling performers, they simply play their role again. I coined the terms "virtual factitious disorder" (Feldman, Bibby, & Crites, 1998) and "Munchausen by Internet" (Feldman, 2000) to refer to people who simplify this "real-life" process by carrying out their deceptions online. Instead of seeking care at numerous hospitals, they gain new audiences merely by clicking from one support group to another. Under the guise of illness, they can also join multiple groups simultaneously. Using different names and accounts, they can even sign on to one group as a stricken patient, his frantic mother, and his distraught son all to make the ruse utterly convincing.

Clues to Detection of False Claims

Based on experience with two dozen cases of Munchausen by Internet, I have arrived at a list of clues to the detection of factititous Internet claims. The most important follow:

1. the posts consistently duplicate material in other posts, in books, or on health-related websites;

2. the characteristics of the supposed illness emerge as caricatures;

3. near-fatal bouts of illness alternate with miraculous recoveries;

4. claims are fantastic, contradicted by subsequent posts, or flatly disproved;

5. there are continual dramatic events in the person's life, especially when other group members have become the focus of attention;

6. there is feigned blitheness about crises (e.g., going into septic shock) that will predictably attract immediate attention;

7. others apparently posting on behalf of the individual (e.g., family members, friends) have identical patterns of writing.

Lessons

Perhaps the most important lesson is that, while most people visiting support groups are honest, all members must balance empathy with circumspection. Group members should be especially careful about basing their own health care decisions on uncorroborated information supplied in groups. When Munchausen by Internet seems likely, it is best to have a small number of established members gently, empathically, and privately question the author of the dubious posts. Even though the typical response is vehement denial regardless of the strength of the evidence, the author typically will eventually disappear from the group. Remaining members may need to enlist help in processing their feelings, ending any bickering or blaming, and refocusing the group on its original laudable goal.

References: Feldman, M.D. (2000): Munchausen by Internet: detecting factitious illness and crisis on the Internet. Southern Journal of Medicine, 93, 669-672 Feldman, M.D., Bibby, M., Crites, S.D. (1998): "Virtual" factitious disorders and Munchausen by proxy. Western Journal of Medicine, 168, 537-539 Feldman, M.D., Ford, C.V. (1995): Patient or Pretender: Inside the Strange World of Factitious Disorders. New York, John Wiley & Sons

Making Our Blogs Completely Private Very Soon

Dear all,

This is just a heads-up. I will be making this blog and our wordpress blog completely private very soon. It is very unfortunate but it has come to my attention that someone has stolen one of Isaac's picture and is using it on a board saying that it is a picture of her daughter. Okay first of all, I hope Isaac is not insulted because someone is passing him off as a girl. Secondly, its kind of funny because this person and her husband are supposedly white and pretty blond and she decided to steal the picture of an Asian boy to use as her daughter's picture. Finally, the picture she stole is from my avatar and on the right hand side there is a yellow tag that says "stomach" in Chinese character. The tag was to indicate the NG tube when Isaac was in NICU in JAPAN. It would be impossible to find a tag like that in a NICU in the US or some other Western countries.

I have been thinking of making our blogs private for a while but when I last seriously thought about it, someone found our blog after his wife who was pregnant with twins and started leaking water and I was able to help this family a little. So I thought may be God wanted me to leave the blog open to help others. However, I think its time for me to shut this down from the public eye. If I am able to figure out how to load all of my posts on this link onto a different blogger blog keeping our videos intact (I wasn't able to keep our videos intact on our new wordpress blog), I will move the contents over to the new blog and make this blog public again after delete my blog entries on here except for a general description of what we went through and include some helpful links for others to find.

Thank you so much for all of your prayer and support for us. If you would like to continue to view our blog, please email me at rachelandisaac@gmail.com.

Also, if you do see any of our images being misused or stolen anywhere else, I would really appreciate it if you would notify us as well.

p.s. I am keeping everything up for another day or so to allow the administrators of the board on which Isaac's picture was misused to verify my story and will then make everything private.

Take care and God bless,

Sonia